July 10, 2004
I Hate...
I hate how my clusters make me feel old--how I end up lying in bed with an oxygen mask on while my son holds my hand and looks at me with concern.
I hate how my clusters make me feel like a bad father--how I am forced to ignore my son's crying because I need to inhale ten more minutes of oxygen--how I sometimes wish that he would just leave me alone so that I can deal with my pain in peace.
I hate how my clusters make me feel like a junkie--how desperate I get for my drugs, how I am restless and nervous if I don't have any drugs on me. When a bad cluster hits, I have a ritual: I take my statdose pen and disassemble it and lay all of the pieces out in front of me. I prep an area on my arm. I bring the needle up to my skin. There is a moment of hesitation, anticipation. In that moment, there is nothing more important than that needle, nothing I care about more than getting its contents into my bloodstream. Then the needle slides under my skin. It doesn't hurt at all. I push the drug unto my system and wait. And wait. And wait until that blessed moment when it starts to kick in and all of my troubles melt away.
- wink [July 10, 2004 12:08 AM]enoch choi says:
i feel for you, wink. you're no junkie! it's just a horrible disease. hope your doc can find some preventative meds for you. the image of your son crying next to you and you unable to help is so upsetting...
Julie says:
I echo Enoch. Wow, wink. So sorry for the pain for all of you...wish I could help somehow...
tania choi says:
hey wink,
so sorry about the clusters, can't imagine how it is with your son. Hang in there... praying for a release.