wink     ; )

Cluster Update

An update for those who are wondering how I'm doing on the Cluster front. The Clusters are still coming (latest one was this morning), but they are less frequent and less intense than before. We're back down to about one a day and 4-5 on the Kip scale. Last week my doctor prescribed some new meds for me. One of them seems to be doing its job. ;) (The other two...not so much. The first one failed to have any effect whatsoever. The other gave me a very itchy rash.)

Though the clusters are weaker and less frequent, the energy drains are astounding. I need to sleep all the time and I'm staggering around when I'm awake. I'm hoping that I'm just fighting off a cold in addition to the clusters because I can't think of any other good reason why I have so little energy.

(The energy drains are also responsible for my lack of posts for the last few days.)

I've also gone cold turkey on the Advil. My doc advised me to quit using NSAIDS lest they reduce the effectiveness of my cluster meds, and also to reduce the possiblilty of rebounds. I miss my Advil. I've had so many "normal" headaches and other pains (like cold sores and sore throats) which Advil would easily take care of. Now I just have to suffer those minor aches so that I can better deal with the killer pain of clusters.